TK2 CURES
I am Art Jr.
My friends and family call me 'Arturito'. I have been fighting TK2 since 2012. I’ve come so far thanks to all of the thoughts and prayers of those who know my miracle story. I celebrated my first birthday strong and quickly became weaker.
At the age of five I lost my speech and motor skills. Today, I can sing, play with my toys, use my tablet and join my parents for visits around the neighborhood.
Although I still visit numerous hospitals and attend to protocols for treatment, I have improved a lot against all odds.
I have come a long way because my parents continuously focus on helping me and other parents of children who also have similar rare diseases.
All the medications and studies are continuing to help me gain the strength I need to keep going. I know I am being a good example for other children with TK2 to see me in action. Continue to have faith and believe that they too can find confidence to always push forward.
Thank you so much for meeting me and join us in counting our blessings!
Enjoy my Music Show because
I FEEL THE LOVE!
Lion King "Can You Feel the Love Tonight"
by: Arturito Estopinan
I am Art Sr.
For twenty-seven years, I served as Chief of Staff to Florida's U.S. Federal Representative, Ileana Ros-Lehtinen. We were so lucky to locate the necessary information and resources to help my son with his disease.
We found the Columbia University Medical Center and spoke to Dr. Michio Hirano. Currently, he serves as Chief of the Neuromuscular Division, Co-Director of the CUMC Muscular Dystrophy Association clinic, and Director of the H. Houston Merritt Center for Muscular Dystrophy and Related Diseases. He evaluated patients with myopathies and other neuromuscular disorders, like Arturito’s TK2.
Despite being the pilar of our families happiness and source of hope, Dr. Hirano is also Medical Director at Columbia University Department of Neurology's Laboratory of Molecular Genetics/Laboratory of Metabolic and Mitochondrial Disease.
Without his dedication and commitment to our sons’ improvements, we couldn’t be celebrating Arturito’s daily successes. His collaborations are powerful.
We appreciate your attention in following our research studies to help find a cure to TK2.
Parents Like Us
The Washington Posts:
Jorge Ribas produced this video to show the struggle in fighting these rare diseases. There is not much attention for research or specialized funding.
This video shows how determined parents can forge a path for other families encountering similar obstacles. Other children like Arturito fight rare diseases. An estimated 25 million Americans suffer from about 7,000 different rare diseases.
Collaborators
Columbia University Irving Medical Center (CUIMC) is responsible for our sons life today!
We turned to them for support when no one else had information out Mitochondrial DNA Depletion. CUIMC is home to four professional colleges and schools that provide global leadership in scientific research, health and medical education, and patient care.
There goals are to define the molecular, cellular, and physiological basis of diseases, like TK2, through basic, translational, and clinical research and to use this knowledge to develop new diagnostic and treatment methods to improve human health.
We appreciate the efforts of the doctors and nurses at Johns Hopkins Hospital, our first point of reference in Maryland. This is our local hospital where Arturito receives a lot of his medical attention. Thank you so much for your Amazing Work.
Johns Hopkins Hospital is committed to partnering with patients, families, and caregivers throughout their healthcare experience. The Johns Hopkins Hospital is proud to be ranked #4 in the nation out of more than 4,500 hospitals in U.S. News & World Report's 2021-22 Best Hospitals list. They once again rank nationally in all 10 pediatric specialties surveyed by U.S. News & World Report, with seven specialties among the top 20.
Secure Bank Link for Contributions
TK2 CURES MISSION
The mission of TK2 Cures is to advocate for scientific research of studies to improve experimental medications and treatments to sustain health of patients with Mitochondrial DNA Deletion syndrome and their families around the world.
Email us:
contact@tk2cures.com
You can also find us here:
TK2 CURES MISSION
The mission of TK2 Cures is to advocate for scientific research of studies to improve experimental medications and treatments to sustain health of patients with Mitochondrial DNA Deletion syndrome and their families around the world.
Email us:
contact@tk2cures.com
101 Hillsmere Court
Annapolis, MD 21403
You can also find us here:
